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CTRI Number  CTRI/2022/12/048138 [Registered on: 15/12/2022] Trial Registered Prospectively
Last Modified On: 04/11/2023
Post Graduate Thesis  No 
Type of Trial  Interventional 
Type of Study   Biological 
Study Design  Other 
Public Title of Study   This is a clinical study to evaluate efficacy, pharmacokinetic and safety of human with normal immunoglobulin for intravenous administration in patients with primary immunodeficiency diseases. 
Scientific Title of Study   A Prospective, Nonrandomized, Open label, Single Arm, Multicentric, Phase III Clinical Study To Evaluate Efficacy, Pharmacokinetics And Safety of Human Normal Immunoglobulin For Intravenous Administration In Patients With Primary Immunodeficiency Diseases 
Trial Acronym   
Secondary IDs if Any  
Secondary ID  Identifier 
0121-22, Version: 1.0, Date: 11 April 2022  Protocol Number 
 
Details of Principal Investigator or overall Trial Coordinator (multi-center study)  
Name  Prashant Modi 
Designation  Associate Vice President  
Affiliation  Lambda Therapeutic Research Ltd 
Address  Lambda House, Plot No. 38, Survey no. 388,Near Silver Oak Club,S. G. Highway, Gota

Ahmadabad
GUJARAT
382481
India 
Phone  07940202214  
Fax  07940202021  
Email  prashantmodi@lambda-cro.com  
 
Details of Contact Person
Scientific Query
 
Name  Dr Naman Shah 
Designation  Sr. General Manager 
Affiliation  Lambda Therapeutic Research Ltd. 
Address  Lambda house, Plot No. 38, Survey no. 388, Near Silver Oak Club,S. G. Highway, Gota

Ahmadabad
GUJARAT
382481
India 
Phone  07940202214  
Fax  07940202021  
Email  namanshah@lambda-cro.com  
 
Details of Contact Person
Public Query
 
Name  Prashant Modi 
Designation  Associate Vice President  
Affiliation  Lambda Therapeutic Research Ltd 
Address  Lambda House, Plot No. 38, Survey no. 388,Near Silver Oak Club,S. G. Highway, Gota

Ahmadabad
GUJARAT
382481
India 
Phone  07940202214  
Fax  07940202021  
Email  prashantmodi@lambda-cro.com  
 
Source of Monetary or Material Support  
Intas Pharmaceutical Ltd., India Intas Plasma Fractionation Unit, Plot No. 496/1/A&B, Sarkhej-Bawla Highway, Matoda, Sanand, Ahmedabad- 382213, 
 
Primary Sponsor  
Name  Intas Pharmaceutical Ltd India 
Address  Intas Plasma Fractionation Unit, Plot No. 496/1/A&B, SarkhejBawla Highway, Matoda, Sanand, Ahmedabad- 382213, India 
Type of Sponsor  Pharmaceutical industry-Indian 
 
Details of Secondary Sponsor  
Name  Address 
NIL  NIL 
 
Countries of Recruitment     India  
Sites of Study
Modification(s)  
No of Sites = 9  
Name of Principal Investigator  Name of Site  Site Address  Phone/Fax/Email 
Dr Samarendra Mahapatro  AIIMS  Department of Clinical Research,Room no.N/a,All India Institute of Medical Sciences, Sijua, Patrapada, Bhubaneswar, Odisha - 751019
Khordha
ORISSA 
9438884180

samarendramahapatro@yahoo.com 
Dr Sagar Bhattad  Aster- CMI Hospital  Department of Clinical Research, Room No. NA, Airport Road, Sahakar Nagar, Hebbal, Bagalore, Bangalore, Karnataka- 560092
Bangalore
KARNATAKA 
9779433934

drsagar.bhattad@asterhospital.com 
Dr Mukesh Desai  Bai Jerbai Wadia Hospital for Children  Department of Inborn Errors of Immunity, Bai Jerbai Wadia Hospital for Children, Acharya Donde Marg, Parel, Mumbai- 400012
Mumbai
MAHARASHTRA 
9820037087

mmdesai007@gmail.com 
Dr Sanjeeva GN Narayachar  Indira Gandhi Institute of child Health, Bangalore  Department of Clinical Research, Room No. NA, Indira Gandhi Institute of child Health, South Hospital Complex, Dharmaram College Post, Bangalore
Bangalore
KARNATAKA 
9945657034

sanju.gn26@gmail.com 
Dr Liza Rajsekhar  Nizams Institute Of Medical Sciences  Department of Clinical Research, Room No. NA, Punjagutta Rd, Punjagutta Market, Punjagutta, Hyderabad, Telangana 500082
Hyderabad
TELANGANA 
9391008618

lizarajasekhar@gmail.com 
Dr Nita Radhakrishnan  Post Graduate Institute of Child Health  Department of Clinical Research,Room No NA,Post Graduate Institute of Child Health, Sector 30, NOIDA, Gautam Budh Nagar, Uttar Pradesh, 201303, India
Gautam Buddha Nagar
UTTAR PRADESH 
9999041524

nitark@gmail.com 
Dr Puja Srivastava  Radiance Hospital  Department of Clinical Research, Room No. NA, 3rd & 4th Floor, Shital Varsha, opp. Manan Motors, nr. Vijay Char Rasta, Navrangpura, Ahmedabad, Gujarat 380009
Ahmadabad
GUJARAT 
8155891234

dr.pujasrivastava@gmail.com 
Dr Amita Aggarwal  Sanjay Gandhi Postgraduate Institute of Medical Sciencies  Department of Clinical Research, Room No. NA, Department of Clinical Immunology & Rheumatology, SGPGI, Lucknow
Lucknow
UTTAR PRADESH 
9473584267

aa.amita@gmail.com 
Dr Shweta Bansal  Sir HN Reliance Foundation & Research Centre  Department of Clinical Research, Room No. NA, Prarthana Samaj, Raja Ram Mohan Roy Rd, Girgaon, Mumbai, Maharashtra 400004
Mumbai
MAHARASHTRA 
9920200002

Shweta.Bansal@rfhospital.org 
 
Details of Ethics Committee
Modification(s)  
No of Ethics Committees= 9  
Name of Committee  Approval Status 
IEC,Bai Jerbai Wadia Hospital for Children,Dr. Mukesh Desai  Approved 
IEC,Super Speciality Pediatric Hospital and PGTI SSPHPGTI-Dr. Nita Radhakrishnan  Approved 
Institute Ethics Committee of Sir HN Reliance Foundation Hospital and Research Centre, Dr. Shweta Bansal  Approved 
Institute Ethics Committee, Dr. Amita Aggarwal  Approved 
Institute Ethics Committee, Dr. Sanjeeva GN Narayachar  Approved 
Institutional Ethics Committee Aster CMI Hospital,Dr. Sagar Bhattad  Approved 
Institutional Ethics Committee, AIIMS-Dr. Samarendra Mahapatro  Approved 
NIMS institute of Ethic committee, Dr. Liza Rajsekhar  Approved 
Sangini Hospital Ethics Committee, Dr. Puja Srivastava  Approved 
 
Regulatory Clearance Status from DCGI  
Status 
Approved/Obtained 
 
Health Condition / Problems Studied  
Health Type  Condition 
Patients  (1) ICD-10 Condition: D849||Immunodeficiency, unspecified,  
 
Intervention / Comparator Agent  
Type  Name  Details 
Intervention  Human normal immunoglobulin intravenous; 5% and 10% solution  Dosage Level(s)- 200-900 mg/kg of body weight every 21 days or 28 days as per the investigator discretion,Route of Administration-IV infusion,Duration of dosing - IMP will be administered for 12 months at frequency as per Investigator discretion. 
Comparator Agent  NA  NA 
 
Inclusion Criteria  
Age From  2.00 Year(s)
Age To  65.00 Year(s)
Gender  Both 
Details  Participants are eligible to be included in the study only if all of the following criteria apply-
1 Participant or their legally acceptable representative must sign ICF indicating that he or she understands the purpose of, procedures and restriction required for the study Parent(s) (preferably both if available or as per local requirements) must sign an ICF indicating that he or she understands the purpose of, and procedures required for, the study and is willing to allow the child to participate in the study.2 Participant must be 2 to 65 years of age (both inclusive) at the time of providing the informed
consent.3 Participants with documented clinical diagnosis of a primary immunodeficiency disease as
defined by IUIS (International Union of Immunological Societies) and require treatment with IVIg. Confirmation of PID diagnosis may include a review of infection history, serum IgG
concentration at diagnosis and prior to immunoglobulin therapy and responses (failure to
achieve two fold rise in IgG antibody titre) to vaccination with polysaccharide and protein
vaccines.4 Participants with documented agammaglobulinemia (defined as the total absence of one or more classes of antibodies) or hypogammaglobulinemia (defined as low levels of one or more classes [that is at least 2 standard deviations under the mean level per age) including but not limited to the following: humoral-based immunodeficiency syndromes (e.g., X-linked
agammaglobulinemia, common variable immunodeficiency), and combined immunodeficiency syndromes without lymphocytopenia (e.g., hyper-immunoglobulin M [IgM] immunodeficiency syndrome)
• Newly diagnosed participants- who are eligible to receive IVIg treatment as per the investigator discretion.• Participants already on IVIg treatment− Participants must be receiving IVIg treatment for primary immunodeficiency
− Participant must be receiving stable dose of an approved IVIg within 200-900 mg/kg (± 20% of the mean dose for the last 3 infusions) with established treatment intervals of 21- or 28-day (±3 days or ±4 days, respectively) for at least 3 infusion cycles (one of which could be the screening visit result).− At least 2 documented IgG trough levels while receiving an IVIg, of more than or equal to 450 mg/dL obtained at 2 infusion cycles within 12 months (1 must be within 6months) prior to enrollment.5 Participants who are otherwise medically stable on the basis of physical examination, medical history and vital signs, chest x-ray and 12-lead ECG performed at screening. Any abnormalities must be consistent with the underlying illness in the study population and this determination must be recorded in the participant source documents and initialed by the investigator.6 Participants who are otherwise medically stable on the basis of clinical laboratory tests performed at screening. If the results of the serum chemistry panel, hematology, or urinalysis are outside the normal reference ranges, the participant may be included only if the investigator judges the abnormalities or deviations from normal to be not clinically
significant or to be appropriate and reasonable for the population under study. This determination must be recorded in the participant source documents and initialed by the investigator.7 A female participant is eligible to participate if she is not pregnant or breastfeeding, and at least one of the following conditions applies:• Is not a woman of childbearing potential (WOCBP) OR• Is a WOCBP and using an acceptable contraceptive method during the intervention period. The investigator should evaluate the effectiveness of the contraceptive method in relationship to the first dose of study intervention.• A WOCBP must have a negative highly sensitive serum pregnancy test at screening and negative urine pregnancy test before IMP administration.• Additional requirements for pregnancy testing after study intervention are located in Appendix 10.2.• The investigator is responsible for review of medical history, menstrual history, and recent sexual activity to decrease the risk for inclusion of a woman with an early undetected pregnancy. A female participant must provide assurance to follow precautions to avoid pregnancy during the study period.8 Male participants are eligible to participate if they agree to the following during the intervention period and for at least 6 months after the last dose of study intervention:• Must agree not to donate sperm for the purpose of reproduction
PLUS EITHER• Be abstinent from heterosexual [or homosexual] intercourse as their preferred and usual lifestyle (abstinent on a long-term and persistent basis) and agree to remain abstinent
OR• Must agree to use contraception /barrier as detailed below:− A male participant must wear a condom when engaging in any activity that allows
for passage of ejaculate to another person
− Male participants should also be advised of the benefit for a female partner to use a highly effective method of contraception as condom may break or leak when having sexual intercourse with a woman of childbearing potential who is not currently pregnant.10 Participants must be willing and able to adhere to protocol requirements. 
 
ExclusionCriteria 
Details  Any potential participant who meets any of the following criteria will be excluded from participating in the study:1 History of clinically significant cardiac, vascular, pulmonary, gastrointestinal, endocrine, neurologic, rheumatologic, psychiatric, or metabolic disturbances. 2 Known allergies, hypersensitivity, or persistent reactions (urticaria, breathing difficulty, severe hypotension, or anaphylaxis) following human normal immunoglobulin intravenous or its excipients or following plasma-derived products (refer to the prescribing information
of study intervention) OR known history of anaphylactic reactions to IgA found in other
products.3 Exposure to blood or any blood product or derivative, other than commercially available
human IVIg or human albumin within the past 3 months.4 Participant has known Selective Immunoglobulin A (IgA) Deficiency (with or without
antibodies to IgA). (Note: exclusion is for the specific diagnostic entity. It does not exclude
other forms of humoral primary immunodeficiency which have decreased IgA in addition to decreased IgG requiring immune globulin [IgG] replacement).
5 Participant with an acquired medical condition that is known to cause secondary immune deficiency, such as chronic lymphocytic leukemia, lymphoma, multiple myeloma, chronic or recurrent neutropenia (ANC less than 1000 cells/mm3), or human immunodeficiency virus (HIV) infection/acquired immune deficiency syndrome (AIDS).6 Participant having contraindication for intravenous immunoglobulin or has been diagnosed
with dysgammaglobulinemia, isolated IgG subclass deficiency, isolated specific antibody
deficiency disorder, or transien hypogammaglobulinemia of infancy.7 History of autoimmune hemolytic anemia.8 History of congenital impairment of pulmonary function.
9 The participant currently has a known hyperviscosity syndrome.10 Participant has a predisposition for acute renal failure (e.g. any degree of pre-existing renal insufficiency or routine treatment with known nephritic drugs) and/or has a history of acute renal failure; and/or is on dialysis.11 Participant has total protein >9 g/dL and/or participants with myeloma, macroglobulinemia (IgM) and paraproteinemia.
12 Participant (if less than 18 years of age) has non-controlled hypertension at a level of greater than or equal to the 90th percentile blood pressure (either systolic or diastolic) for their age and height or the adult participant has non-controlled arterial hypertension (systolic blood pressure more than or equal to 160 mmHg and/or diastolic blood pressure more than or equal to 100 mmHg).13 Participant has a known history, or is positive at enrollment, for human immunodeficiency virus (HIV), hepatitis B virus, hepatitis C virus.14 Participant with documented history of bleeding disorders or who are on anti-coagulation therapy.15 Participant has an active viral or bacterial infection or symptoms/signs consistent with such
an infection (as documented by culture or diagnostic imaging and (or) a body temperature
exceeding 38.5°C (101.3°F)), excluding chronic sinusitis or bronchiectasis, within the two
weeks prior to the initial dose of investigational product. Participants may be receiving antibiotics as long as signs/symptoms of infection have been absent for two weeks prior to the initial infusion of IP.Note: If an viral or bacterial infection occurs during the screening period and prior to the first dose of study intervention, the participant will be a Screen Failure.16 The participant is receiving any of the following medications: (a) immunosuppressants
including chemotherapeutic agents; (b) immunomodulators; (c) long-term systemic
corticosteroids defined as daily dose more than or equal to 0.15 mg of prednisone equivalent/kg/day for more than 10 days.Note: Intermittent courses of corticosteroids of not more than 10 days would not exclude a participant. Inhaled or topical corticosteroids may be allowed at discretion of the investigator.17 Participant has a lifetime history of at least one thrombotic event including deep vein thrombosis, cerebrovascular accident, pulmonary embolism, transient ischemic attacks,
unstable or advanced ischemic heart disease or myocardial infarction.18 Participant has significant protein losing enteropathy, nephrotic syndrome, or lymphangiectasia.19 History of Lymphoma, leukemia, or any malignancy except for basal cell or squamous epithelial carcinomas of the skin that have been resected with no evidence of metastatic disease for 5 years; carcinoma in situ of the cervix; or malignancy, which is considered cured with minimal risk of recurrence.
20 Participant has known substance or prescription drug abuse.21 Participant had major surgery within 4 weeks before screening, or will not have fully
recovered from surgery, or has surgery planned during the time the participant is expected to
participate in the study.
NOTE: Participants with planned surgical procedures to be conducted under local anesthesia
may participate. However, the same needs to be documented in the patient case-record files
and will not be considered as serious adverse event. 22 Prior to screening, participants received an investigational intervention or used an invasive investigational medical device within 30 days or 5 half-lives, whichever is longer, or has received any investigational blood product, with the exception of other IgG products, within
the previous 3 months before signing informed consent.23 Congestive heart failure (New York Heart Association III/IV), cardiomyopathy, cardiac
arrhythmia associated with thromboembolic events (e.g., atrial fibrillation), or any condition
for which, in the opinion of the investigator, participation would not be in the best interest of
the participant safety or that could prevent, limit, or confound the protocol-specified
assessments.24 Participant with any condition for which, in the opinion of the investigator, participation would not be in the best interest of the participant (eg, compromise the well-being) or that could prevent, limit, or confound the protocol-specified assessments.
 
 
Method of Generating Random Sequence   Not Applicable 
Method of Concealment   Not Applicable 
Blinding/Masking   Not Applicable 
Primary Outcome  
Outcome  TimePoints 
To evaluate the efficacy of human normal immunoglobulin
intravenous preventing serious
bacterial infection (SBI) compared with historical control data in participants with primary immunodeficiency disease. 
Per person per year. 
 
Secondary Outcome  
Outcome  TimePoints 
To evaluate pharmacokinetics of human normal immunoglobulin
intravenous infusion in
participants with primary
immunodeficiency (PID) disease 
28-day infusion and 21-day infusion. 
 
Target Sample Size   Total Sample Size="89"
Sample Size from India="89" 
Final Enrollment numbers achieved (Total)= "Applicable only for Completed/Terminated trials"
Final Enrollment numbers achieved (India)="Applicable only for Completed/Terminated trials" 
Phase of Trial   Phase 3 
Date of First Enrollment (India)   23/12/2022 
Date of Study Completion (India) Applicable only for Completed/Terminated trials 
Date of First Enrollment (Global)  Date Missing 
Date of Study Completion (Global) Applicable only for Completed/Terminated trials 
Estimated Duration of Trial   Years="2"
Months="0"
Days="0" 
Recruitment Status of Trial (Global)   Not Applicable 
Recruitment Status of Trial (India)  Not Yet Recruiting 
Publication Details    
Individual Participant Data (IPD) Sharing Statement

Will individual participant data (IPD) be shared publicly (including data dictionaries)?  

Response - NO
Brief Summary   This is a prospective, Non-randomized, Open Label, Single Arm, Multicentric, Phase III clinical study to evaluate efficacy, pharmacokinetic and safety of human normal immunoglobulin for IV administration in patients with primary immunodeficiency diseases. 
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