Cerebral palsy is a neurodevelopmental disorder. Cerebral palsy (CP) is an umbrella term for a group of disorders of movement and posture, caused by a non-progressive interference in the developing brain. Risk factors for CP varies from prenatal period to antenatal period for up to 2 years. Known risk factors are genetic variants, congenital anomalies, preterm birth, kernicterus, intrauterine growth restriction and infection, hypoxic ischemia and cerebrovascular insults during pregnancy and in infancy, and accidental and non-accidental brain injury.

Although the prevalence of cerebral palsy is decreasing in high income countries but in developing countries prevalence is still high. In low to middle income countries, the prevalence is 3.4 per 1000 live births. This is only a tip of

Sampling Technique

Consecutive sampling will be employed to select study participants from patients attending the Outpatient Department (OPD) of a tertiary care hospital. Individuals meeting the inclusion and exclusion criteria will be finally enrolled in the study after providing informed written consent.

Study Plan

Written consent will be taken. Caregiver demographic data will be recorded in a working proforma. After that they will be evaluated for inclusion and exclusion criteria. Caregivers will be evaluated using 2 questionnaires. Quality of Life will be assessed using WHOQOL-BREF. Care giver strain will be evaluated using Modified Caregiver Strain Index (MCSI).

Questionnaire

Modified Caregiver Strain Index (MCSI) scale

Measure caregiver burden. An Ordinal scale which is valid and reliable with 13 questions. The Internal reliability coefficient of 0.90.

World Health Organization Quality of Life Brief Scale (WHOQOL-BREF)

Developed by the Word Health Organization as a quality of life assessment that would be applicable cross-culturally. It is a 26 item, self-reported measure, especially useful for measuring outcomes with adults with a psychosocial disability. The Internal reliability coefficient of 0.92.